Posts

Post Procedure

Hi there. I have had quite a few people asking me how I am doing post surgery and reminded me that I should put a little update here. So my laparoscopy was April 1st and took longer than mom and I thought it would but that’s not really a bad thing. My doctor took his time to be very thorough. I have 6 little scars now from where the camera was inserted. Six may seem like a lot but to me necessary and worth it. He found a few interesting things - He thought that he might find a build up of scar tissue inside of me because of the visible scars from my transplant but he did not see that build up which is great. He checked a few others things relating to my transplants like the connections to my bladder and that all looked really good. Relating to my endometriosis symptoms he found/did quite a few things that were note worthy. He found what looked to me like a large cyst on my left ovary that he removed. He also found a build up of cells on my tubes that he said can cause cys
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An Update of Sorts

Hey there, It has been almost a year since I have given any kind of health update. It's nice to be into the daily life stuff of my disease instead of the more dramatic days of around 7 years ago. But as many of you know that doesn't mean I am not dealing with things that come up periodically. And the day to day medical routines that keep me alive are still and will always be a thing. I thought I would write today to fill you all in on some non-kidney health things that have come up and are proving to be a problem. Well really thing that I have been dealing with for a long time and putting off taking care of until my kidney health was under control. Though never officially diagnosed with it I show and have shown a lot of the symptoms of having endometriosis. Within the past year or so it has been so bad that missing work has become quite frequent. While that sucks I do have a doctor who as far as I can tell believes me when I talk about the pain and sickness that accompa
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It’s been a while

Hey there, So it’s been a while. I wish I could say I was returning with amazingly great news about life or some mind blowing tidbit about Jesus. But I think by now if you are reading this or have rread any of my posts in the past you know that is not this blog. Having a blog that mostly chronicals the downs of being a person with a chronic illness means that posting again after a bit of a hiatus can really only mean one thing - more downs to report. If you’ve seen my recent social media posts. You might think, “How can that be? You are doing all this work at your house.” Well when you are sick you get good at knowing that life goes on no matter how you feel. So you go on and sometimes above with it. Here’s what is going on - after having a horrible appointment with a gynecologist in something like October I finally decided I really needed to see someone else because the increasing pain on and off my period is not ok. And as someone who has wanted a hysterectomy for more than 1
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Some Updates of a Sort

Hey there, It's been a while. I thought about writing more than a few times about soaking up summer sun about fear about who our real enemy is (not each other) but then I would decide to spend more of my day relaxing or working in my yard or whatever instead of writing. But I have been thinking recently I should write again about illness in particular write about how even when I look healthy my body is still sick. Even when I look healthy my body still would not function without the carefully monitored concoction of medications that I ingest twice a day. Say I miss one dose - I will be ok but I will feel the side effects. If I miss a full day I will feel like shit. If I miss two or three days of those pills then a hospital stay is likely. I just say that to try to make it fully known how sick my body is. And the importance of those medications. Even though they make it so things like a common cold knock me out for days they also keep me alive. And any change of dosage wrecks
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Quick Post

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My mom mentioned this weekend that every morning when she gets into work and gets her computer going she plays this version of this song. Every morning - and the students that walk into the office in the morning hear this. I love that this song because of all that has come our way has become an anthem for my mom. This has been a bit of a stressful, nerve-wrecking week for her and many others. But from what I have seen and heard so far the people of my hometown continues to choose love and to stand strong together. And I just gotta say that makes me pretty dang proud. Another thing that makes me proud is that I got to celebrate some of the people that I deeply love with some of my favorite people. Friday we celebrated mom's birthday with a group of friends that we also celebrated with on Saturday when that bunch plus more went to a wedding. One of my camp brothers got married and gosh it fills my heart with such joy to see my brothers happy and loving and living for Jesus. My h
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My Momma

Hey there, So it's been a bit longer between posts recently and today I thought "Why not post this week?" So here we are. This past month my mom has been posting on facebook different things about dealing with kidney disease. It's been at times a painful walk down memory lane but I think also a good eye opener for people (even those who have known us for years) that I still deal with my health issues on a daily basis even if I am not in the hospital right now. Some cool things have come from her posts and I am glad she can advocate for not just me but others dealing with kidney failure issues. Also it's always great to hear your mom say good things about you. Last week while my mom was posting she was actually at my house part of the time during her spring break. Basically she's the best on many levels. Not only does she encourage me from afar and speak words of life on social media but she also takes time to come see me and take care of me and my house.
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Blog Update Type Thing

Hey guys, So last Sunday I was worn out and thought "Whatever I can post later." Then Friday I thought "Whoops, I completely forgot to post at all." Ha! That happens sometimes. What also happens sometimes is me not knowing at all what to post about. I have been trying to think of things to post about that pertain to my health. Things that I deal with regularly that I don't really think about but that not everyone has to deal with. Sometimes though I can't think of anything. I think in part because sometimes I am so used to thinking about those things that I forget others don't. Things like watching how much time I spend in the sun because I am more susceptible to skin cancer because of the meds that are keeping me alive. Though lately that hasn't been something I have to think about because of the grey end of winter days. I am coming to terms with the fact that it's ok that I might not always have anything much to share in this setting but
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