stories of a real life wonder woman

Hey there, So first I have a few things to add/correct from last weeks post. First correction - I wrote that I had a leg bag in 2nd grade when it was really 3rd grade. On the plus side both my 2nd and 3rd grade teachers were great and at the time (and possibly still) were best friends and were fantastic with dealing with me pre and post transplant. Second correction - I wrote that I had a hemoglobin of 2.2 and was life flighted and then a week later after briefly being home went back after having seizures because of brain swelling. But I flipped those. It was seizures released and then 2.2 hemoglobin. Both times life flighted. Both times unsure if I would live - well actually with the seizures they did not know at all what was going on and with the 2.2 hemoglobin all the nurses were like, "You should be dead. I have never sen anyone with a 2.2 and be alive." Sometimes it is very easy to get things mixed up because so many things happened and so much of life felt like ch...

Hey there, So I thought about posting about the adventure that was this past week. It was not a fun adventure. Even though I often comment that I am a filthy hippy who doens't shower it was hard and frustrating to not have a working shower all throughout the week. And then not consistently get the help I needed from the people at Lowe's who were supposed to be able to help me. When you end up feeling like you know more than the Lowe's "plumbers" after only a few days of trying to solve your problems that can be frustrating. But I guess learning a lot is a good thing. Anyway this ended up happening - I ended up getting most of the pieces we needed (and learning a lot about pipe sizes and converting pipe sizes with different pieces) and daddy came and put it all together for me. I am so thankful he did because if he didn't even with me having the right pieces I still won't have a working shower because putting that all together takes a lot of strengt...

Hey there, So it's Sunday night as per usual i don't know for sure what to write about. I keep thinking about maybe writing a little recap of life and about things that I deal with on a daily basis because of being sick in part for the newcomers to my blog but also because I don't feel like I often do an adequate job at explaining life as a person with chronic kidney disease. But since I am still sort of unsure how to go about that that idea for now is still simmering on the back burner. What I will do is share this - https://butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory/ It's a little lengthy but this person does a great job at explaining everyday as a sick person and explaining spoon theory. Since I am still recovering from a cold I have been thinking about my spoons even more. Being sick on top of being sick is always a spoon stealer. That has made days this past week long and tiring but I've made it. Sometimes when you are thinking...

Hey there, Health update - I am mostly feeling better today. My cold seems to mostly be gone. I have a cough as the last sign of a cold. The only other thing is that my body is completely wiped out from trying to fight this cold. So I still have been on my couch pretty much all day. I guess I should explain wiped out more - because my body has been trying to fight this cold I have zero energy today. I have been dizzy most of the day. Getting up can make it worse. And I am very tired. But I am still feeling way better than I did most of the week. Going into work tomorrow should not be a problem. Speaking of - overall last week I worked a total of a day. I kept trying to go in but then wouldn't be able to stop sneezing or had no voice. When you work at what could be called the service desk of a library none of that is good or helpful. Thanks for all the support via facebook this week as I have semi chronicled what this week has been like. Since I have spent so much time on th...

Hey ya'll, First - I have gone about two weeks while only taking I think one stomach pill. So that feel really good. Makes me feel like my stomach is finally healing. Though this week it has been acting up a little but I am sick so of course my body is going crazy. Which leads me to second - I am sick. I went into work on Monday for two hours and pushed myself through them getting done what I wanted to get done and then thought "why am I doing this?" And went home. When you are unsure if any sound will come out when you open your mouth that can make days working at a library circulation desk very hard. It's hard to help people when they can't hear you. Also when my supervisor heard me answer the phone when I was getting ready to leave I think she chuckled a little because it is sort of funny. Anyway I have been home trying to rest but mostly coughing and blowing my nose both of which can make my throat hurt more which kind of makes me want to cry. I did go to ...