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Showing posts from November, 2011

Sometimes...

I am unsure of what I want to write on here...not because I don't have thoughts or ideas about what to write but because I am afraid I will share too much...or that I will share and open up and it will be pointless... So while I try to decide how much of my thoughts I want to share with you I will tell you a little about my Thanksgiving...It was wonderful...I got up and watched the parade...all of it even the pre-parade Broadway stuff...and I loved it...especially the parts where people messed up doing lip sync...I do feel bad for some of them now cause they are catching heat...it would appear that people think that singers actually sing during the parade and don't think about how that wouldn't work very well...just saying ti might be hard to do while on a moving object...sure you could be loud enough for a small parade but this is Macy Thanksgiving Day Parade...there's no way you're going to be loud enough in that one little float...anyways...I did that...and the

I will rise out of these ashes...

Rise from the struggle I've found and this rubble on the ground I will rise - Shawn McDonald - Rise I know this is a little early then I normally post but I'm in the mood to write so I kind of thought why not... First I want to say I am really happy to be home...feels good to lay in my bed in my house...and to have an actual place for all of my stuff...not having that sort of control drives me a little crazy so feeling like I have that back is a plus for sure... Second I should tell you how the appointment on Thursday with the surgeon went...when he saw my arms he did say they were small but not to small for a fistula...but he doesn't want to do a surgery to give me a fistula right now...instead he wants to wait and see what happens with Randy's testing process...he said if Randy and I are a match and I get a transplant soon then it would be dumb to put in a more permanent dialysis sight especially since it requires another surgery...he thinks that would be pointl

I believe always always...

Our savior never fails even when all hope is gone God knows our pain and his promise remains He will be with you always - Always - Building 429 I have been thinking about this song a lot recently...I think part of the reason I have been besides the fact that I love this song is that people often make sort of a big deal of my family and I dealing with this mess of my life the way we do...people always say that its encouraging or they don't know how we do it or they comment on how good of attitudes we have about it all...when this happens I often think what else am I supposed to do I have no real control over any of this not even giving up because the only time all of this stops is when I am dead so I can't really give up cause I have no control over when my life ends...and I don't always have the best attitude either...I only really go out when I am in a good mood so I don't snap on people that I don't really know...but I do believe that God never fails and that fo

I can't decide which was the best...

Part of my day today...it was either when Papa Kerr came to give me a hug right away when he saw me...a little boy named Levi (my favorite little boy at church) giving me a picture he drew for me during church...or napping this afternoon in my bed with Nicole...in other words today was pretty dang great...this whole weekend was because I was out of the hospital and back in Dixon for the weekend...got back late Friday night and didn't do much...then Saturday spent some time with my mom and my sister while my dad and some guys from the church put our new windows in...then my brother sister-in-law and nephews came over for a little bit...then after that Nicole came over and helped mom make pizza...and I got a haircut which I really needed...then my brother Danny came over...it was a great day...and then as I already said today was great... Mom and I are at Taylor's right now...we got here like 5:30 or 6...somewhere in there...then went grocery shopping with her...we haven't

Mystery

Well my doctor Dr Sader figured out a couple months ago that the things my body does are a mystery and now more people here at the hospital are figuring that out... I've now been at the hospital for this stay for a week so that's awesome...not...but they might have finally figured out what is up with my jacked up body... The other day the GI doctors decided to run this blood test to see if I had this certain hormone in my body that can produce ulcers in the body...they ran that to see if that's why I have the ulcer that I have but they might have just found out much more...the results take a couple days to come back and as of this morning Doctor Sader looked at it and though he is not a GI doctor he was concerned...he did a little research to make sure he was looking at things right and here's what he found out...this hormone level in your body is supposed to be around 100...mine was 1300 something...which obviously is bad...from what I understand from what he said