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Showing posts from August, 2013

It's that time of the week

When I post about my week...and well I don't really know what to report...after my post on Tuesday my week had been pretty uneventful... I have been sleeping through the night and falling asleep easy...which hasn't happened in like five years...and I have been feeling really good again...so that's nice...what a difference a few little changes in my meds makes... I start online classes again tomorrow...not really looking forward to it since I didn't really like them last semester...but as I have said before I like the actual work so that makes up for the classes being boring... Mainly this week besides working I have been reading and writing...and I finally got back into a better routine of having quiet time...so that all has been great... I don't know about you but sometime I forget how much I love doing the things I feel I am gifted at...like writing...I have been writing what feels like non-stop this weekend...and I forgot how good it feels to create...

I'm having a great day

And this time I am not being sarcastic when I say that... Here's how my day played out... I left the house a little before 6 as per usual on a blood test day...so I can get to the hospital by or before 8 for blood test...I like to get there before 8 because after 8 it gets really busy and you have to wait like an hour...so I was sitting there waiting to get my blood drawn and had to run to the bathroom while waiting because my body decided today was the perfect day to have diarrhea...then after that unfortunate event I got my blood drawn and headed out to go to Target since I had about an hour and a half to kill before my appointment at ten... So I get to Target and look at pajama pants for mom because who doesn't love Target pajama pants...I picked out some and then started walking through the store because I was going to kill time there until 9 when a nearby book store opened...anyway I am walking around in there for maybe five minutes...and I am back in the back by the

Short and Sweet

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I shouldn't have posted a blog earlier in the week...I used up my good ideas on it... So I have an appointment on Tuesday and I could use prayers for sure...I am thinking that because I seriously have been so out of it...sleeping my days away because I can't stay awake (mom said that I was maybe only awake for 4 hours Saturday)...I am planning on telling my doctor that I think I am over medicated on more than just my blood pressure medicine...since whenever I tell them how tired I am they say "I don't know what that's all about"...well I can tell you...I am a tiny little thing and all these meds are too much for my system...so I need courage to do that...I also I thinking I should tell them I am not leaving the office until they take me off some meds because I am not toughing it out for another week...which also requires courage...and well when I am at the doctor's office that is something I am lacking in...I get there and I start to think I shouldn'

Thoughts from this week so far

First...Nicole went off to school...which stinks...and I miss her...but I am not going to do a special post all about her because I already talk about her a lot...and she knows how much she means to me and that's the important part... Second...I have still not been feeling that great...I called the doctor's office about it on Monday and when the nurse called me back after talking to Dr. Hsu she said that they have to wait for Dr. Sader because he's the one that knows what to do about meds...and he is out of the office all week...so just tough it out...which made me what to yell at them...I am so annoyed and frustrated...I want to know why I am seeing Dr. Hsu and not Dr. Sader if Hsu doesn't even know what to do with out him...and I have already been toughing it out for four weeks...ugh...but I didn't yell or anything because despite my frustrations I still really like my nurses and Dr. Hsu...and I really don't want to be a jerk or a difficult patient...so I

Today was a good day

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First I should say I keep having different problems...like not being able to stay awake after taking my morning meds (I'm not making this up...when I stay awake I start to feel like I am going to pass out...the other day I almost fell into my desk at home...can we say over medicated)...I've also been having some other problems that I have been bringing up to my nurses and doctors...but I am feeling like no one is listening to me...so that's always loads of fun...I am going to call them again tomorrow to talk to them...so pray for me that I would know what to say to get them to listen and that they would listen...I am kind of dreading calling because I am so frustrated already...and I don't want to be a moody jerk with them...I just want to be heard and fixed...because this is not normal...I'm pretty sure I only went into two days of work this week because the rest of the time I was either at the hospital for blood tests or a zombie who couldn't function...I seem

A Miss Matched Mix of Things

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So first I want to say I love getting my haircut...may sound weird but I do...I think it's such a self esteem boost to have a fresh haircut...and as many of you know this is my haircut... Recently I have been going even shorter on the sides...and the top is getting really blonde...my hair is going through so many weird changes because of transfusions and the transplant...but I feel powerful...noticeable...and strong with this haircut...and as many of you know I modeled it after this fantastic lady's do... I find her inspiring...and I know sometimes I talk about her too much but really I love a strong woman who is not afraid to be herself and I want to celebrate that...and then I got really excited this week when I saw this... That would be Tina Majorino and I have loved her since the first time I saw her in "Corrina Corrina" (which still happens to be one of my all time favorite movies) all those years ago...and I am not really surprised by this c